Falls Prevention with @clareRCGP on Twitter


Holistic care

As regular readers will know, my main practice interest is in mental health, however, all OTs are trained in both mental and physical health. Providing holistic care to the people I’m working with is enhanced by this training. For instance, in mental health services for older people, falls are as relevant as in orthapaedic OT, so it’s always useful to revisit other practice area specialities and share knowledge within the profession. 

Professional Development

With this in mind, it is always a pleasure to get drawn in to chats on Twitter about areas of practice that use knowledge that would otherwise become rusty due to lack of use: and it’s an exciting challenge for me to revisit my knowledge of falls prevention and to participate in #fallschat recently, on Twitter. 

I was excited to be asked by Dr Clare Gerada (who had attended a workshop on falls prevention) to contribute to her weekly RCGP Blog about falls prevention. I sent her my “Ten Top Tips for Falls Prevention”, repeated below. 

My 10 Top Tips for Falls Prevention:

  1. Make sure the hallway and stairs have working lights- if possible, replace with low-energy light bulbs and keep lights on overnight. 
  2. Wear slippers with an appropriate heel, so that they stay firmly on the feet.
  3. Regular, gentle exercise can help reduce risk of falling and also fear of falling. Exercise such as Tai Chi is particularly helpful at improving balance. 
  4. Check out signs that a person is unsure on their feet such as “furniture walking”, or clear dirty marks where walls are used for support. Having grab rails installed at key sites around the home or at the entrance to the home can be arranged by local community OT services.
  5. Fasten any torn bits of carpet or lino down- gaffer tape is ideal for this, if an older person can’t afford to replace floor coverings.
  6. Tripping over the edges of rugs is really common- either remove rugs, or fasten down the edges to reduce this risk.
  7. Medication management- GPs are well placed to review medications and watch for interactions, non-compliance etc.
  8. Check for use of alcohol- which increases falls risk and may  interact  with medications, or even be used to self-medicate undiagnosed depression.
  9. Poor foot care can be a reason for not wearing slippers, and can contribute to falls. GPs can check if a person would like a Chiropody referral, if foot care is difficult for an individual.
  10. Multi-disciplinary teamworking can solve many issues- so don’t be shy about asking for help! Occupational therapists, physiotherapists and chiropodists can be really useful contacts for falls prevention.

A Few Falls Facts: 

  1. A fall at home that leads to a hip fracture costs the state £28,665 on average (726 million a year in total). This is 4.5 times the average cost of a major housing adaptation and over 100 times the cost of fitting hand and grab rails to prevent falls (Heywood et al 2007).
  2. The provision of a home safety programme and exercise programme delivered by occupational therapists was found to reduce falls significantly (Campbell AJ et a, 2005).
  3. A community based occupational therapy based falls prevention service cut the number of falls among older people by half according to evidence published in the BMJ

(from COT website available at http://www.cot.co.uk/ot-helps-your-client/falls-prevention)

Can I use the “Top 10 Tips” as a resource for my work/ care setting?

The “10 Top Tips and a Few Falls Facts” post is available as a free-to-use PDF that you may print off and use in your care setting (or as a reminder when visiting an older relative?) please see the following link:

http://binscombe.net/blog/wp-content/uploads/2013/02/10-Top-Tips-for-Falls-Prevention.pdf

Further learning

I was delighted that the post was so warmly received by many health professionals and carers, who said they would be interested in using it. I was also pleased to hear further information from professionals with expertise that I don’t possess- from Optometrists, Pharmacists, Telecare consultants and Cardiac Doctors- who all had further info to share. I bookmarked Tweets that contained further links, so that I could share them with you, here.

8th Feb from @Vision2020UK: Really good stuff from the @CollegeOptomUK re vision and falls well worth talking to them http://bit.ly/m2ZCyx  Top 20!

8th Feb from @helen_whiteside: NECESSARY drugs increase falls risk too- need reg. review/monitor. ref selection 4 ur doc Google scholar search for medications and falls

8th Feb from @ClarkMike: Falls tip -make sure any daily living equipment is well-maintained and meets your needs – secondhand could be poor quality/unsafe

8th Feb from @ClarkMike: Falls tip - #telecare can turn on lights when you get out of bed or raise the alarm if you fall or don’t return to bed

8th Feb from @ClarkMike: “Falls tip- telecare and falls- Exploring the use of Telecare  

10th Feb from @cardiacdoc1: “Don’t forget this… The overlap between syncope and falls in the elderly“ Shaw and Kenny (1997) The overlap between syncope and falls in the elderly. Postgrad Med J. 1997 October; 73(864): 635–639.

Lessons learned

Obviously, no quick “Top 10 Tips” guide can ever be a substitute for good multi-disciplinary assessment and intervention to prevent and manage falls. I thought our experiment in crowd-sourcing tips from the was a big success. It stimulated discussion among healthcare professionals who self-select to collaborate on Twitter, and was widely spread through their networks. It was critiqued as being quite basic, but the point of it was to show how small actions can help to keep someone safer at home- it was never meant to be a piece of post-graduate medical education.

And yes, next time, I’ll be sure to add in tips about how regular sight checks, telecare solutions, and underlying medical explanations can all add to our understanding of falls prevention! Perhaps we could see similar guides produced by others with more education about these areas than I?

#JoharisWindow- public, real-time CPD on Twitter


The #nhssm chat: “What are you an avatar of?”

During a recent #nhssm chat, @MarkOneInFour started to explore what our presence in social media represented about our selves. We didn’t have time during the chat, but we did decide to explore the concept through the evening that followed. People very generously offered their feedback on how they viewed us, which was really helpful, because one can never really know how one comes across to others without specifically exploring it!

Personal reflection: if you ask for feedback, what if you get it?

It felt quite exposed to do this experiment- I wasn’t sure if anyone would respond, and if they did, what they would say about me! I was prepared to deal with any feedback that I got on the basis that it represented how I came across in social media- it didn’t reflect how people felt about me, personally, as many of the people responding don’t know me personally. I am a confident person, and I knew I had personal resources to keep myself safe during the experiment, including having friends and followers to call on for support if I felt hurt by any comments made.

Mental health warning: do you feel safe to hear feedback?

If anyone is interested in doing this experiment for themselves- just take a moment to check out that you’re okay with receiving feedback before you start.

My Johari’s Window:

Arena

(known to self and others)

able, caring, energetic, friendly, sympathetic

Blind Spot

(known only to others)

accepting, bold, brave, clever, complex, confident, dependable, dignified, extroverted, giving, happy, helpful, idealistic, independent, intelligent, kind, knowledgeable, logical, loving, modest, nervous, observant, organised, powerful, proud, reflective, responsive, searching, self-assertive, self-conscious, sentimental, trustworthy, warm, wise, witty

Façade

(known only to self)

Unknown

(known to nobody)

adaptable, calm, cheerful, ingenious, introverted, mature, patient, quiet, relaxed, religious, sensible, shy, silly, spontaneous, tense

All Percentages

able (13%) accepting (9%) adaptable (0%) bold (9%) brave (4%) calm (0%) caring (27%) cheerful (0%) clever (9%) complex (9%) confident (18%) dependable (13%) dignified (9%) energetic (4%) extroverted (9%) friendly (27%) giving (4%) happy (4%) helpful (50%) idealistic (9%) independent (22%) ingenious (0%) intelligent (40%) introverted (0%) kind (4%) knowledgeable (45%) logical (9%) loving (4%) mature (0%) modest (9%) nervous (4%) observant (13%) organised (9%) patient (0%) powerful (9%) proud (4%) quiet (0%) reflective (18%) relaxed (0%) religious (0%) responsive (18%) searching (9%) self-assertive (36%) self-conscious (9%) sensible (0%) sentimental (4%) shy (0%) silly (0%) spontaneous (0%) sympathetic (4%) tense (0%) trustworthy (13%) warm (27%) wise (9%) witty (9%)

Created by the Interactive Johari Window on 27.1.2013, using data from 22 respondents.
You can make your own Johari Window, or view MeOT’s full data.

Personal reflections

As more and more people added feedback, Johari’s Window showed increasing congruence between my internal idea of how I come across, and the views expressed by the people who kindly offered feedback. This is an example of the “Wisdom of Crowds”

http://en.wikipedia.org/wiki/The_Wisdom_of_Crowds

It is also interesting to note how this could contribute to personal resilience in the face of criticism. It can be important to remember that the views of a single person don’t reflect the general way one is seen by everyone one encounters: sometimes, we’ve all experienced a personality clash. Perhaps this is of interest to people seeking 360 degree feedback- which may be more accurate with an increasing number of contributors?

Storify

I storified the conversation, see this link:

http://storify.com/claireOT2/johari-s-window-real-time-virtual-cpd-experiment

Grabchat

Some of the interesting comments wee made before we settled on a hashtag to help collate the Tweets. However, once they were collated under the #JoharisWindow tag, it was easy to grab the chat:

Involved

Top resources

http://kevan.org/johari?name=shirleydsc
http://kevan.org/johari?name=uk_james
http://socialinnovation.typepad.com/silk/silk-method-deck.html
http://kevan.org/johari?name=jonbolton
http://kevan.org/johari?name=fi
http://kevan.org/johari?name=amcunningham
http://kevan.org/johari?name=fionaarttwitter
http://kevan.org/johari?name=@ajax_63
http://kevan.org/johari?view=MeOT
http://kevan.org/johari?name=MeOT

Related tags

#socialmedia #some #hubmsi

See Twitter for more tweets, people, videos and photos for #johariswindow

@claireOT @shirleyayres @MarkOneinFour fancy giving me some feedback? Go to http://t.co/WEzLelUO #johariswindow (Wed, 23 Jan 2013 21:29:11 +0000)
@uk_james @shirleyayres @claireot #johariswindow good tool – one of many in Social Innovation Lab Kent’s Method Deck http://t.co/Zo4PKzO3 (Wed, 23 Jan 2013 21:32:46 +0000)
@shirleyayres @claireOT done I like this tool! #johariswindow @MarkOneinFour (Wed, 23 Jan 2013 21:33:35 +0000)
@MarkOneinFour @claireOT @shirleyayres Done it! Also, now get what it is and how it works #johariswindow (Wed, 23 Jan 2013 21:37:14 +0000)
@shirleyayres Fascinating! Social Innovation Lab Kent’s Method Deck includes #johariswindow http://t.co/ewrdKbqt HT @uk_james @claireOT (Wed, 23 Jan 2013 21:38:53 +0000)
@shirleyayres @uk_james @claireOT @MarkOneinFour starting to feel my age now realise I first used #johariswindow in 1975!(Wed, 23 Jan 2013 21:40:49 +0000)
@claireOT @MarkOneinFour you and Shirley agreed on one word “knowledgable”- isn’t it funny? I didn’t pick it! #johariswindow @shirleyayres (Wed, 23 Jan 2013 21:41:20 +0000)
@shirleyayres @claireOT @MarkOneinFour I’m such a simple soul this is now my new most favourite tool – thanks Claire! #johariswindow (Wed, 23 Jan 2013 21:43:45 +0000)
@claireOT @MarkOneinFour done it! What do you think? #johariswindow @shirleyayres (Wed, 23 Jan 2013 21:44:41 +0000)
@shirleyayres @MarkOneinFour done – interesting the areas @claireOT & I agree on! #johariswindow (Wed, 23 Jan 2013 21:46:45 +0000)
@shirleyayres @MarkOneinFour @claireOT this ihas to be the *must do* activity of the evening! Love your feedback http://t.co/KKGlwgdJ #johariswindow (Wed, 23 Jan 2013 21:50:56 +0000)
@shirleyayres @Ermintrude2 I’d love your feedback! http://t.co/toQXSl0a #johariswindow HT @claireOT for discovering this tool! @MarkOneinFour (Wed, 23 Jan 2013 21:56:57 +0000)
@claireOT @MarkOneinFour it’s so interesting, isn’t it? @shirleyayres @Ermintrude2 #johariswindow (Wed, 23 Jan 2013 22:09:05 +0000)
@claireOT @RobWebster_LCH @PlanetPavs @AgencyNurse @JoWren1 thanks for your feedback, guys, really helpful #johariswindow (Wed, 23 Jan 2013 22:11:54 +0000)
@Ermintrude2 @MarkOneinFour I added my thoughts to your #johariswindow :) @claireot @shirleyayres (Wed, 23 Jan 2013 22:12:17 +0000)
@claireOT @shirleyayres i agree :-) @markoneinfour perhaps “conflicted” or “confused” is what “complex” feels like, inside? #johariswindow (Wed, 23 Jan 2013 22:12:58 +0000)
@claireOT @JoWren1 yes, I’ve never used it publicly before today… go on…. Get involved! #johariswindow (Wed, 23 Jan 2013 22:15:17 +0000)
@shirleyayres @PaulBromford a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a HT @claireOT for finding #johariswindow (Wed, 23 Jan 2013 22:17:22 +0000)
@Ermintrude2 How do you perceive me? (well, it’s limited to nice things!) http://t.co/iT5sE5ex #johariswindow @shirleyayres @markoneinfour @claireot (Wed, 23 Jan 2013 22:22:36 +0000)
@shirleyayres I’d love feedback – how do I come across to you via #socialmedia ? http://t.co/toQXSl0a #johariswindow (Wed, 23 Jan 2013 22:22:53 +0000)
@uk_james @claireOT @shirleyayres @markoneinfour @ermintrude2 done! It’s quite smart isn’t it?! Shirley… You’re next…. #johariswindow (Wed, 23 Jan 2013 22:24:46 +0000)
@claireOT @Ermintrude2 done it! What do you think? #johariswindow @shirleyayres @markoneinfour (Wed, 23 Jan 2013 22:27:02 +0000)
@uk_james @shirleyayres done! It’s a picture that keeps building… Right, time to make me one…. #johariswindow @claireOT (Wed, 23 Jan 2013 22:29:15 +0000)
@ajax_63 @shirleyayres how could I resist :) Found it hard to separate out social media and IRL though! #johariswindow (Wed, 23 Jan 2013 22:32:31 +0000)
@shirleyayres @uk_james @claireOT @MarkOneinFour @Ermintrude2 @PaulBromford #johariswindow the latest tool to sweep across Twitter!(Wed, 23 Jan 2013 22:33:11 +0000)
@shirleyayres @ajax_63 thanks I hope you are going to do one too Andrew :-) #johariswindow (Wed, 23 Jan 2013 22:34:00 +0000)
@PaulBromford @shirleyayres @claireOT certainly! here you go http://t.co/hhN0zekb @ paulbromford #johariswindow (Wed, 23 Jan 2013 22:34:21 +0000)
@FionaArt @claireot @shirleyayres @MarkOneinFour I added my thoughts to your #johariswindow :) Will you fill in mine please :-) .(Wed, 23 Jan 2013 22:34:38 +0000)
@uk_james . @shirleyayres @claireot @markoneinfour @ermintrude2 here’s the link http://t.co/9OgxDIpy how do you perceive me on Twitter? #johariswindow (Wed, 23 Jan 2013 22:36:41 +0000)
@ajax_63 @Ermintrude2 a pleasure, but six was not enough :) #johariswindow (Wed, 23 Jan 2013 22:37:19 +0000)
@claireOT Thanks for the valued feedback, @_jonb @FionaArt @anniecoops #johariswindow (Wed, 23 Jan 2013 22:40:48 +0000)
@amcunningham My #johariswindow http://t.co/ETqqOdk9 … thinks @shirleyayres !!(Wed, 23 Jan 2013 22:40:52 +0000)
@uk_james Hello Twitter followers! How do I come across on #socialmedia ? Please let me know at http://t.co/9OgxDIpy #johariswindow (Wed, 23 Jan 2013 22:42:23 +0000)
@claireOT @Darrenruddick thank you- I value the feedback- it’s so interesting to learn how I come over vs how I think I come over! #johariswindow (Wed, 23 Jan 2013 22:42:31 +0000)
@claireOT @jaxrafferty thank you- it’s really valuable to get feedback, don’t know why I didn’t think of doing this before! #johariswindow (Wed, 23 Jan 2013 22:46:38 +0000)
@claireOT Lol! No suprise for me that no-one has identified me as “introverted” or “mature”! #johariswindow @shirleyayres @MarkOneinFour @Ermintrude2 (Wed, 23 Jan 2013 22:48:33 +0000)
@uk_james RT @shirleyayres : @uk_james @claireOT @MarkOneinFour @Ermintrude2 @PaulBromford #johariswindow the latest tool to sweep across Twitter!(Wed, 23 Jan 2013 22:48:39 +0000)
@FionaArt http://t.co/9G6upeQm How do u think I come across? #johariswindow (Wed, 23 Jan 2013 22:51:03 +0000)
@ajax_63 TY @shirleyayres :) and so, I’d love to know, how do you see me via social media? http://t.co/qFTAy5Op < experiments with #johariswindow (Wed, 23 Jan 2013 22:51:14 +0000)
@claireOT @Ermintrude2 lol! You may be “silly” in real life, but your blog and feed belie the reality!! @shirleyayres @markoneinfour #johariswindow (Wed, 23 Jan 2013 22:52:42 +0000)
@claireOT @jaxrafferty I think that congruence in #some is really important. I am fortunate to feel safe enough to be honest. #johariswindow (Wed, 23 Jan 2013 22:53:42 +0000)
@claireOT @Darrenruddick really? I was surprised people identified me as “brave”, it certainly doesn’t feel like that from inside! #johariswindow (Wed, 23 Jan 2013 22:54:50 +0000)
@shirleyayres +1 RT @claireOT @Ermintrude2 lol! You may be “silly” in real life, but your blog and feed belie the reality!! @markoneinfour #johariswindow (Wed, 23 Jan 2013 22:55:01 +0000)
@FionaArt Thanks @claireOT @shirleyayres @MarkOneinFour for completing my #johariswindow , definitely food for thought :-) .(Wed, 23 Jan 2013 22:56:02 +0000)
@claireOT Anybody want to offer me some feedback on how I come over on #SoMe ? Follow the link- it is very quick! #johariswindow http://t.co/aPZNfdXp (Wed, 23 Jan 2013 22:57:49 +0000)
@shirleyayres @Ermintrude2 @claireOT @MarkOneinFour @PaulBromford I now have about 12 #johariswindow open. I agree fascinating how others perceive us!(Wed, 23 Jan 2013 23:01:43 +0000)
@Chris_Goulden RT @uk_james : @shirleyayres @claireot #johariswindow good tool – one of many in Social Innovation Lab Kent’s Method Deck http://t.co/Zo4PKzO3 (Wed, 23 Jan 2013 23:11:48 +0000)
@shirleyayres @HelReynolds a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a HT @claireOT for finding #johariswindow (Wed, 23 Jan 2013 23:14:27 +0000)
@shirleyayres @whatsthepont a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a HT @claireOT for finding #johariswindow (Wed, 23 Jan 2013 23:14:50 +0000)
@shirleyayres @MindingsStu a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a HT @claireOT for finding #johariswindow (Wed, 23 Jan 2013 23:18:43 +0000)
@shirleyayres @PaulBromford starting to feel my age now realise I first used #johariswindow in 1975!(Wed, 23 Jan 2013 23:23:50 +0000)
@shirleyayres @DCCTayside a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a #johariswindow (Wed, 23 Jan 2013 23:25:25 +0000)
@shirleyayres @clarkmike a great tool we’re experimenting w/ I’d love your feedback! http://t.co/toQXSl0a #johariswindow (Wed, 23 Jan 2013 23:28:03 +0000)
@shirleyayres @TomSprints a great tool we’re experimenting with I’d love your feedback! http://t.co/toQXSl0a #johariswindow (Wed, 23 Jan 2013 23:28:42 +0000)
@claireOT I’m really interested to know what you think of me, do you have a couple of minutes to describe me? #johariswindow http://t.co/E1wxNOF0 (Wed, 23 Jan 2013 23:32:00 +0000)
@ajax_63 @shirleyayres @amcunningham @ermintrude2 @claireOT TY all! do you know how hard this is for an INFJ :) #johariswindow (Wed, 23 Jan 2013 23:32:28 +0000)
@shirleyayres @ajax_63 showing my ignorance here what is an INFJ? #johariswindow @amcunningham @Ermintrude2 @claireOT (Wed, 23 Jan 2013 23:37:20 +0000)
@shirleyayres @jonbolton a great tool we’re experimenting with I’d love your feedback http://t.co/toQXSl0a #johariswindow (Wed, 23 Jan 2013 23:50:22 +0000)
@shirleyayres @Action4Ageing thanks Chris for completing my #johariswindow – are you tempted? Looking forward to catching up at #hubmsi (Wed, 23 Jan 2013 23:53:22 +0000)
@shirleyayres A big thank you to @kevan a lot of us have had great fun with your interactive #johariswindow this evening!(Thu, 24 Jan 2013 00:22:54 +0000)
@shirleyayres @jonbolton @Accaber_Red starting to feel my age now realise I first used #johariswindow in 1975!(Thu, 24 Jan 2013 00:24:21 +0000)
@shirleyayres @jonbolton thanks for the #johariswindow feedback a fascinating picture emerging! Are you tempted?(Thu, 24 Jan 2013 00:41:43 +0000)
@jonbolton So a few of us were experimenting with #johariswindow last night. Can you describe me in 5-6 words? http://t.co/EKki3jzM (Thu, 24 Jan 2013 08:21:55 +0000)
@AMLTaylor66 RT @jonbolton : So a few of us were experimenting with #johariswindow last night. Can you describe me in 5-6 words? http://t.co/EKki3jzM (Thu, 24 Jan 2013 08:38:55 +0000)
@shirleyayres I’d love feedback – how do I come across to you via #socialmedia ? http://t.co/toQXSl0a #johariswindow (Thu, 24 Jan 2013 09:45:25 +0000)
@FionaArt http://t.co/6DYEl0KX? How do u think I come across on twitter as @FionaArt ? #johariswindow (Thu, 24 Jan 2013 13:29:24 +0000)
@shirleyayres @whatsthepont I would have liked to be able to add analytical to your #johariswindow ! @claireOT @ena_lloyd (Thu, 24 Jan 2013 23:42:31 +0000)
@akosiabiegalet Wag masyadong malinis ang tingin sa sarili. Ayan tuloy hirap tumanggap kapag sinisita ng iba. #johariswindow (Sun, 27 Jan 2013 05:03:49 +0000)

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#Occhat Nov 20th- Using equipment to facilitate occupation


I’m in the hotseat for the #occhat Twitter discussion tonight- and it’s been a while since I was able to facilitate, so I am looking forward to it and feeling anxious about it in equal measure!

Why are we looking at equipment?

One of our core skills as OTs is the prescription of environmental adaptations including adaptive equipment, so of course, we’re always interested in gadgets and things to make life easier.

As a disabled woman, I’m very grateful for some of the equipment that has become part of my everyday life, like my mobility scooter, or my bed stick. But equipment is much broader than just the stuff you can get through your local equipment store.

I consider my eye-Pad to be one of the best bits of adaptive equipment I have. It’s a multi-functional entertainment system, so if I’m ill, I can watch TV in bed, or catch up with my friends on social networks. If I have light sensitivity, I can alter the settings to make using it more comfortable. If there is nothing for it but to keep my eyes firmly closed, I can switch to listening to radio comedy or drama. This is brilliant for keeping me entertained and distracted from the pain when I am ill!

My children are able to use the features of the tablet to pinch, select, turn and type emails to their family, using a simple email app. They also play with their Moshi Monsters, dance to films on YouTube, and draw and make videos. They can do all this with me in my bed, when I’m ill- there is no bit of kit in the equipment store that you could say that about! So a tablet computer can help me to perform the life role of “Mum”, even when I have a disability that makes some activities very difficult indeed.

Image

I know people who use Siri as speech recognition software- where they have spasm or pain in their fingers, for instance. (p.s. if you have Siri, do ask him/her “Who let the dogs out?”- it’s very funny!)

But this isn’t an advert for Apple, and yes, other tablet computers are available (my partner loves his Google Nexus). We’re thinking about equipment in it’s broadest sense, and how it enables us to perform occupations and life roles.

COT partnering with Boots

We’re also prompted to consider this topic in the light of the recent announcement by the COT of the new partnership they have developed with Boots- please see http://www.cot.co.uk/homepage/new-partnership-puts-occupational-therapy-high-street

Do we think this promotes the benefits of OT to a wider audience?

Are there concerns related to this?

Does it help or hinder the public perception of OT to be linked so explicitly with equipment provision- after all, we do so much more?

I know you will have lots of brilliant examples of how equipment helps you to live life your way. You may also have opinions about COT partnering with Boots. To join in the conversation, please join us for our Twitter chat tonight at 8-9pm.

Just add #occhat to your tweets, so we can all see them. And do please remember your responsibilities related to your HPC registration when you Tweet.

See you there!

What would a “Recovery Hub” look like?


I’m currently starting to ask people in online spaces that I visit what would be useful tools for them in their recovery from periods of mental distress.

I want to post a copy of some conversations going on in groups I’m a member of on Facebook, where some really interesting points have been made. Do join in with this discussion- the question posed is:

I wondered if you would be interested in helping me to start a conversation about what services and resources are useful to people who are in recovery after experiencing mental distress?

I’m hoping to be able to prove that service users and carers have some great ideas that they should try to develop- can I ask you to share any ideas you have?

Some initial thoughts-

  • Physical space in a non nhs setting to meet up for a coffee
  • Education/self management resources available to look at or take away
  • Computers and online access to search for your own resources, or build your support networks
  • Staff could arrange to meet you there for appointments, if you didn’t want to go to an nhs building
  • Training for you to develop and run your own groups to support each other
  • Help with getting funding for mental health projects you’ve thought of
  • Access to volunteering
  • Access to paid work, delivering training, speaking about mental health, as peer support workers
  • An online resource, maybe a social network? you could log in from your phone or at home?

None of these solutions would be right for everyone, and I’m sure you’ve got your own ideas- what do you think would be helpful?

The results in so far:

if you suffer with social anxiety the thought of being placed in a group with other people is enough to put some one back in hospital.

me:  if someone has social anxiety, is it helpful to have a range of resources online rather than recommend them come to a physical group?

more services that do home visits would be good – if you have social anxiety, for example, it would help to get to know someone in a “safe” place like your own home, talk about barriers to getting out and then have support (for as long as needed) to go out and meet people.

me:  like a “parachute” service that could be called out to visit at home? would this be mental health staff, or trained peer workers?

main thing would be consistency so you can learn to trust someone and they can take you to different places – maybe with the aim of being able to meet up with people who have similar problems in future

One of my bugbears is the lack of recognition that if you are chronically sick you are more likely to be socially isolated and suffer from depression

me: And equally, people with mental health diagnoses have poor physical health- perhaps we could include this too?

i live in a part of the city where there are very few facilities if you have mental health problems apart from GPs. the support groups, charities, outreach centres etc are mainly on the other side of the city which don’t necessarily have direct bus routes from where i live. buses are difficult when you have social anxiety, going to places you don’t know can be too frightening, and i can’t drive because i have epilepsy. The churches don’t provide much if you’re under 60 but don’t have young children. it’s easy to lose touch with friends when you don’t go out to work and can’t cope with going to the pub.

A consortium of employers in the regional areas that can come together and universally employ an individual in that the individual isn’t committed to a single one employer. This would benefit those employers during there occasional busy days or seasonal times and have a higher success rating for actually being able to maintain some form of employment for the individual.

me: this is exactly what mobility DLA is for to cover costs due to your disability such as taxis for trips to support centres (I know it’s a rotten time to be a DLA applicant, btw) So, for people with social anxieties, it’s important to either have safe ways to travel to a physical centre or hub- or there could be “parachute” visits out into community, or there could be a certain amount of online support for days when physical travel is just too hard? Does that reflect what you’re saying well enough?

me: That’s interesting, xxxxxx, so in your model, people would be “signed up” a bit like signing up to an employment agency? Then they could be allocated work for days that they feel able to do work? Like, sign in by 10 am for today’s work? I’m guessing those people would have to keep records- would they be self-employed, or employed on zero hours contracts?

a friend of mine said a couple of weekends ago there must be loads od small, medium and large companies that have all manner of tasks on projects that someone working from home could do that are hugely time critical but in alarge project needs doing at some point, but project workers, managers etc wouldnt employ someone to do one task,l but if lots of employer could do to an agency that is task focused with all manner of people with skills and knowledge. they work for the agency and the agency make sure the work is done…

I’m against be forced to do work I don’t want just because I feel well on a good day, I want to work but it has to be stuff I want to do other wise my mental state suffers, and being poked and prodded to do work is just putting pressure on people which they don’t need when they are ill, they need to get well first.

me: Yes, the power should sit with the person who has the difficulty as they are best placed to know their own limits. But lots of people want to get back into it- even feel that forced inactivity makes them worse, so lets not assume that this is all part of a sinister way to shove everyone off benefits- I genuinely want to have this conversation and hope to develop a DPULO to respond to this.

me: A bit like this, http://www.taskrabbit.com/?

I make stuff at home I have about one good week in 3 where I manage to do stuff, the rest of the time I’m away with the fairy’s with anxiety much of the time or just resting as I suffer burn out. I would love to make money with my creativity, I have the skills but don’t produce enough of anything to make a living at this time.

Not an employment agency Claire they are a cost to the employers but a consortium of employers themself’s. More in the lines of a sponsorship employment.

yes in effect but for projects, businesses etc . My friend is a project manager, he has a tutorial guide to write, he doesn’t have time to do it but it has to be done before the project goes live. so he thought if he could assign it to an agency, who then finds the right person or offers it up to its clients and they say yes. then as long at is done by the end of the project say in 1 months time it doesn’t matter how long it takes as long as its done. there must be loads of tasks that need doing but no point employing 1 person for what is ordinarily a half-day job but to us is a big thing..

me: I was thinking WE could develop our own “agency” and supply people to work on projects? as part of the recovery process? would have to check out with DWP etc how it would work- but there should be a way of ensuring self-employment as a way for people to do some limited work, with Working Tax Credits as a back-up?

i have mobility DLA, but atm i’m too anxious to go somewhere that i don’t know at all. we could also do with drop-in centres for people who are fighting self-harm urges where they can get support and company. they could also have the ingredients to make that cake that the care team suggested you try …

an agency run by and for people with physical and mental health problems would be great.

Much of those things are already in place from the point of being a hospital patient to work therapy especially in my area any ways.

Not sure self-employment is the way forward especially with all the complexity of paperwork. Many simply wont be able to handle that.

if you have a problem with authority of any sort be self-employed, is an option, you can always get other people to do the paper work

The costs involved in forming agency’s will out weigh purpose and eventually fail.

At least if employers themself’s set this up people will have confidence that those employers are going to provide supportive environments from the outset.

me: I hope it’s okay with you guys, I’m capturing this (anonymised) conversation to keep it on record on my blog at claireot.wordpress.com

me: I agree, there are costs involved. It would be important to ensure we got funded to cover those costs. I think you’re right, we would have to get “sign up” from employers to provide work, but perhaps this would be an extension of the “Mindful Employer” project, or simply as part of their drive to reflect the diversity of the populations they work with?

An example. 33 employment positions I’ve been through in the past maintaining employment due to illness has been the biggest barrier. 18 of those employment positions had been with the same employer this despite walking out on that employer each of those 18 times due to having an illness. In between each of those employment positions faced sanctions of benefits time and time again. On the balance due to the sanctions it wasn’t actually worth carrying on with trying to gain employment as monies over the year balanced out no more than benefits any way.

me: yes, I think this experience is one many people will have shared. We started to work on this at the “Benefits Camp Hackday”. Our team were prototyping an app to use to enable people to show on a weekly basis what work they were able to do, and get their benefits calculated for weeks when they needed more support.

some where that would help do their paper work would encourage more people to start-up for themselves, and if someone failed to earn enough one week and some sort of system that paid and made up for the bad weeks would be good.

Very difficult to calculate an illness Claire one can be ill for months on end with no break then maybe only have a couple of good days. especially if part of the illness is that one is not able to measure time or unaware of time going by.

me: Yes, it is xxxxx and that’s why I think flexibility, and not “pushing” people before they’re ready would be important. But equally, it is important to set a “just right” challenge for people (e.g. as an OT that’s what the rehab would be aiming for) to help people along in their recovery. Perhaps what you’re picking up here is another, separate need, for early access to increased support when you feel like it’s slipping back again? Is that an accurate interpretation of what you’re saying?

Employer sponsorship at minimum based on existing individuals levels of benefits as an outset. With further sponsorship being paid above an achieved hours gained. With all sponsorship based on the level of minimum wage.

me: Hmm, I think this would need some thinking through. I’m not clear what employers would see that as a “good deal” for them, and it sounds a bit like “Workfare Plus”, can we have a bit of a think about how that would be attractive to employers to sign up?

I’d love to help in anyway I can and I think it’s a fantastic idea x

Far from workfare. If a group of employers came together and employed one individual in a coup sponsorship it would actually be cheaper for them all round paying the rate of minimum wage.

In another group, asking the same question,

having bosses who are supportive when you are going thru depression i had to walk from my job because i was not getting any support at all it was on ly when i did what i did then the support came but it was little bit late

me: That’s a great point. So, could a service be provided that helps employees to approach their mental health needs with their employers/ and a complementary service that educates employers how to manage sickness/ support for employees with mental health be part of the package (and stuff about Equality Act etc)? Could it be this is delivered by people who have been through it, who could call on staff expertise as needed? Or just staff? Or just peers?

i think bosses need to be sent on awareness courses to pick up on the first signs of depression it would have helped me big style if i was given the help from the get go i really would like to help others who are going thru what i went thru would like some more info claire it’s so good that your able to help people i wanna do the same maybe volunteering

me: I think for anyone with long-term illness or experience of mental distress, there’s so much we can offer to others who are going down the same road. And you’re right, there’s so much we could do to raise awareness for employers about how to retain staff who become well. Or better still, how to put things in place to protect their workers from becoming ill, if at all possible! So, I see there being a training need (we could deliver to employers) an advice need (for people going through it or carers) and a peer support or “buddy” need (to keep you going when times are tough)- but access to volunteering and even paid work opportunities to get involved with this stuff, not just sharing our stories for free.

I’m serious about this project. It’s clear to me that people with experiences of distress have every right to be involved in service re-design and they have valuable skills and experiences to contribute. I’m actively continuing to continue this conversation, and I would love to hear your views in the comments. Do feel free to comment anonymously if you prefer.

#MindTech- Thoughts and Reflections


This post discusses the recent Mind Tech Unconference, a transcript of the back channel discussing the day can be found in my previous post http://claireot.wordpress.com/2012/03/31/mindtech-the-unconference-grabchat/

There are several issues that I immediately wished to comment on, namely, commissioning criteria in the new health economy, how this is impacted on by the ides of  #mentalhealthpound, the scope of using Apps to support mental health, social prescribing, and the place of the social enterprise in poulation based mental health promotion activity.

Commissioning

This point in time is fairly unique, in terms of the transitions happening in healthcare commissioning I was reliably informed at the #AHPNorth Conference this week by very senior members of the Department of Health just how the new commissioning environment is likely to work. Currently, the system of tariffs for work done has contributed to the “Cinderella” nature of mental health services, as well as thorny issues in attempts to implement Payment by Results etc. One of the salient points is that rather than rely on these historic tariffs as a system for commissioning care, we are more likely to see population based commissioning coming to the fore. Now, one of the advantages of this is that (in theory) it then becomes possible for a successful mental health promotion service to be commissioned, if they can show an effect at  population level for reducing the incidence of mental illness, and a reduction on other areas of the service such as inpatient admissions. This has huge implications for the work of organisations working to promote good mental health such as Moodscope and Mindapples, who both presented information at the Mind Tech event. I’m not clear about the outlined ideas of the #mentalhealthpound presented at the event, but look forward to exploring these and looking at how this in combination with the commissioning environment means we can address funding issues relating to many fantastic projects that many people like myself wish to engage with.

Apps

We all know that the recent MapsandApps project run by the Department of Health was a huge success, and that it really shifted some thinking about how to use crowdsourcing and technology to help to address health inequalities, and to promote good health. In my opinion, this benefit has hardly been touched on in health services, and particularly in mental health services. There are concerns with the Informatics agenda related to this. Who owns the information uploaded by the patient? What are the ethics of allowing the app development company to be selling this (anonymised) information on as another income stream? If these issues are worked out, how do they impact on how our statutory services are funded-will they be expected to pursue similar revenue streams using their valuable data?

It is also worth noting that apps and devices that can take advantage of gaming theory could have an impact on adherence to treatment regimens, perhaps even medications compliance. We know that there is a cost impact to this- as people adhering to treatment regimes and medications schedules are cheaper to engage in health services. If we see the wholesale adoption of gamification in tech applications in health and mental health, how will this affect the bottom line of organisations delivering care?

We know the future is co-morbidity. In the same way that we are now comfortable with APIs that mash up data from several social networks, could we see implications in Telecare and Telemedicine as APIs are developed that mash up data gathered by different specialists, different healthcare providers, that bring personalised, granulated information down to the point of care delivery by doctors and healthcare providers? What does it mean for the de-professionalisation of medical and therapeutic services when these APIs become available to the general public? Will they result in greater self-care, or will they result in people choosing to treat themselves rather than engage in formal healthcare provision?

Social Prescribing- or Occupational Therapy?

I was interested to read one of the first blogs produced upon reflection of the Mind Tech event, by Puffles (working, as ever, with his Bestest Buddy). To read the blog, please see here http://adragonsbestfriend.wordpress.com/2012/03/30/mind-tech-unconference-30-march-2012/

I can’t resist adding one of my favourite photos from Mind Tech: here is @Puffles
lovely to meet @Puffles2010 and his charming handler at #mind... on Twitpic

Picture from @Gandy’s FlickR site, used with thanks.

Bestest Buddy has frankly documented his own difficulties with managing his menetal health, and gives us a great insight into tunderstanding of the nature of mental illness. He describes:

one of the big challenges I faced was getting away from the idea that a short course of medication was going to solve things. It didn’t and it hasn’t. If anything, it’s made me realise that medication in my case has only suppressed the worst of the symptoms and that a longer term recovery is only going to be achieved through a tailored/personalised combination of other things.

Bestest Buddy relates his idea

Conditions such as moderate to mild depression and anxiety by their nature affect and are affected by the lifestyles that we lead. Every time I’ve been through an acute period of anxiety, depression or generally being ‘a mess’ I’ve tried to pick myself up by trying new actions and activities to deal with it.

When I read this sentence, I was struck by the notion that if I had been asked to define what mental health occupational therapy does, my definition would have been very close to that of Bestest Buddy’s idea of social prescribing.

giving patients and GPs the option of looking at what activities might be beneficial for patients I think would be brilliant. Rather than a course of medication and a few sessions of counselling alone, what about things that can complement such treatments? And how about making them on the NHS? This could include things like exercise classes, cooking classes covering things such as foods that help and hinder conditions such as anxiety. It’s one thing saying ‘avoid X,Y & Z’ but quite another to build it into a lifestyle.

It is clear that despite the wish of the public for activity based intervention to mediate mental health difficulty, this is not associated with Occupational Therapy treatment We have to ask ourselves as a profession, why is this? Despite our rich and growing evidence base within the profession and the related dicipline of occupational science, why is the message not getting through to the general public about what we do? How can it be that people who are engaged in mental  health treatment, and who are in attendance at events with other members of clinical staff are not being informed that what they are talking about is occupational therapy?

This is a topic we may cover on the #OTalk #occhat hashtags on Tuesday nights as part of our regular weekly peer-supervision Tweetchats. I think its an issue that deserves some of our attention. The analysis, prescription, and grading of activity to facilitate health really is the bread and butter of what we as OTs can offer. In the new health ecology, we need as a profession to start to stand up and define ourselves in terms that the public can understand- perhaps social prescribing should be added to our list of core competencies? I certainly believe that this is in line with advice I have taken on board from Karen Middleton, the Chief Health Professions Officer at DH after listening to her rousing speech at the AHP North conference.

Social Enterprises in Population Based Commissioning

Taking on board the Section above looking at commissioning, it becomes clear that this is a real opportunity for ex-NHS staff, service uers, mental health activists, and social entrepreneurs who want to make a shift into promoting mental health rather than waiting for mental illness to develop. It’s my belief that this commissioning environment will start to have an impact on the number of Social Enterprises, and the reach that they will have- moving out from community development activities into health promotion, and hopefully into peer-support networks commissioned to mediate mental illness.

I’m working on an interesting Social Enterprise idea which uses peer-support, in combination with appropriate APIs and my Occuaptional Therapy background to both promote good mental health and to catch the early warning signs of mental illness developing. Although it is a worrying time for people who care about healthcare in our Country, I am beginning to think that if we do get this sea-change in the nature of commissioning decisions, then we can see the stage opening up for players like myself and many others, who find their innovative ideas are very difficult to develop within traditional statutory services, and within the big voluntary sector organisations. We are nimble and agile in our peer-to-peer solutions to these issues, perhaps our time has come?

What should be included in a #MedEdMOOC? Social Media in Continuing Professional Development


After previously considering what a MOOC for OT, and indeed for healthcare should look like, I am delighted to report that plans are underway to develop the first MOOC for Healthcare Professionals and other interested people, and the name chosen is MedEdMOOC (Medical Education MOOC).

One of the things to be considered, is what content we would wish to see included in the MOOC. I’m hoping to use some posts to record my hopes and fears for the MOOC, and I look forward to reading your comments about what I’ve written.

First, a quick reminder of what a MOOC is.

Social Media in CPD (Continuing Professional Development) for HCP (Healthcare Professionals)

One of my passions is the use of online technology and social media by HCPs to enhance and update their skills and experience, in order to offer the very best care to their patients. This can take many forms, and perhaps one of the nearest “real life” analogies I have is that of a peer supervision group.

Within peer supervision, a group of people without large differentials in status and seniority come together to share their thoughts, feelings, challenges and successes around their practice. Whilst patient confidentiality is observed during such sessions, challenges in particular cases may be shared with the group in order to get renewed insights and ideas about how to move the treament on. Additional insight may feed back into the case formulation, and therefore affect the future direction of treatment. Similarly, where a success has been hard won by our clients, the delight of the therapist involved might be shared with the group, who might be invited to help reflect on what the critical factors might have been.

Other ideas can be introduced, for example in a Journal Club, where people discuss and critically evaluate as a group recent research relevant to their treatment area(s). New assessments may be discussed, evaluated, or even tried out on each other. Audit tools, ways to collate evidence and interpret statistical information- anything at all that affects the way we can provide care is up for discussion.

Peer supervision is a time efficient way of supporting occupational therapists and HCPs in practice, using the benefits of group process in addition to the benefits of the individual reflective process. In some ways, it can be seen as the equivalent to a therapeutic group as used within OT practice- in that group process and support from peers is as important as the quality of the supervision received.

I see many parallels in the use of peer supervision offline and the use of communities of practice that form online through social media use, or by clustering around topics of mutual interest. One of the differences is that in the online space through the use of social media, this process often happens in a public space, rather than a private one. This changes the experience of membership of the group.

It contains opportunities as well as challenges:

Opportunities

  • By extending the membership beyond natural boundaries such as the employer or the physical location, groups may coalesce around mutual interest where before insufficient members were present in any single location.
  • Groups can be flexible, and a fluid membership can mean that new members can join the group at any time.
  • The non-heirarchical nature of the medium supports the formation of a group of “peers”, despite differences in status that might be apparent in “real life”. This can offer new opportunities to freely share with each other.
  • Groups can offer opportunities to develop confidence and skills in presenting information in an online format.
  • Group membership can lead to “real-life” relationships and support in an offline setting.
  • The public nature of the setting may serve as a reminder of acceptable public behaviour and mores related to professional role, embedding these behaviours in further online activity such as social networking; in line with professional guidance.
  • The public nature of the group means that insights from experts can be fed directly into the group, ensuring accuracy of the information and relevance of the opinions present.
  • The transparency of this approach may be attractive to HCPs who find it in line with their personal philosophy.
  • Patients and the public may be reassured to understand that this process is part of the “back end” of therapeutic work or medicine, ensuring the support they receive is evidence based, and the basis for clinical decision making may be better understood as a result.

Challenges

  • The public nature of the group can inhibit the most frank discussions of difficulties in practice.
  • Where social media guidance is lacking or insufficient, mistakes around information governance, or exposure of the individual practitioner to risk, may occur.
  • Rich information captured in body language and non-verbal cues in the “real-life” group setting may be lost in the online group.
  • Engagement in the activities may not be valued by the employer and traditional line-management structure, undermining the value of the process.
  • Participants could undervalue the process because of the fluidity and ease of membership, thus “drop out” before real benefits are gained.
  • Disruptive influences could “flood” the online space making positive progress of the group within the space difficult.

It is my hope that the MOOC will offer space not only to develop CPD for HCP, but also offer a structure around which HCP can reflect and discuss these challenges and opportunities presented by CPD in a community based in an online environment.

These are my initial thoughts about the value of looking at CPD within a healthcare MOOC, what are yours?

An experiment in Social Media in Clinical OT practice Growing Together 3- Growing shoots


I’ve posted a couple of blogs about my experimental use of Social Media in Clinical OT practice (see part1 and part2). Today’s post discusses the first foray into the use of Social Media.

As I discussed in the first blogs, I visited other groups both within the city and more widely. During these visits, I took photos to share with our group members when we talked about what we could learn from other groups. These photos were also included in reports I made about the visits, which were uploaded to the Staffnet site discussed in the previous post. They made the reports more interesting, and also made my service users more likely to connect with the reports, when I printed them out to share with them a little like magazine articles.

Service users wanted to be involved. They wanted reports like these relating to their project. In response to service users asking if we could take photos of our progress, and to enable the participants in the group to share this progress as they wished, I took photos with my smartphone.  Initially, we only shared the photographs during the tea break with each other, but then I considered the use of a photo sharing social networking site in order to share the photos more widely with family and friends of group members. We talked about how to do this, and settled on using FlickR, a free social media tool for sharing photographs. This would mean they could share their progress with others, all that was required was internet access.

As health service employees we have a duty of care for everybody that uses our services, including protecting their data. Mindful of our Information Governance issues, this was cleared by our IG department, and clear boundaries set for the use of cameras to record progress. Consent forms were developed to capture informed consent from service users before they were photographed. Part of  gaining the informed consent was to discuss what we could do with the pictures  and what kind of boundaries I was operating under in terms of what information would be photographed. We made sure that the majority of the photos we took didn’t have “patient identifiable information” on them (faces, distinctive tattoos) because this made the Information Governance issues much easier to handle, and it made our service users comfortable with the process. Of course, if people didn’t wish to be photographed, we would respect their wishes.

We started to take more pictures, uploading them to the FlickR site we had set up.

As we developed the project and they became more comfortable with what was happening, they did ask to be photographed on occasion. One particularly memorable photo was of a young man holding a crop of onions he was proud of harvesting! Because of our informed consent proceedure, the subjects of the photos (if identifiabe) got a second chance to decline their permission for publication on FlickR, but if they agreed, my clinical reasoning was that it was okay to publish.

Disabled people and people with mental health issues are often socially excluded, and I felt that including the photos within the larger social network was a way to combat some of that exclusion, in our own small way. We had set up a group that was non-stigmatising- it didn’t carry “health” branding, and our group members had as much right to occupy the virtual space as any other community group. Had we encountered any adverse comments or increase in social difficulty for the group members as a result of this, we could have taken alternative action. But we didn’t.

Sometimes, the things which matter in a therapeutic group are not the things we carefully plan for. Within this group, the wildlife that we saw around us became a real hot topic of conversation, and this was another great opportunity to take pictures to share.

We also had a regular visitor in the form of our Allotment cat.

Many people with disabilities and mental health issues don’t have pets because they fear they either cannot afford to look after them, or they have lifestyles which mean they wouldn’t be able to offer the care they feel the animals need. This was the case for several of our group participants. However, they all felt very affectionate about the Allotment cat, and he seemed to return their affection. He would visit during every group, and was inevitably fed and offered a saucer of milk by the group. He would then make his way from knee to knee, offering every group member the opportunity to give him a stroke or two. Who knows what effect this affection has on a person with limited social skills?

At this point, I felt I needed to learn more about Social Media, in order to really maximise how we used it within the group; so I attended a local Social Media Surgery. I am immensely grateful for the help I received there. I felt encouraged to venture further into the realms of social media.

What are your views about using photo sharing social media with mental health service users? Please share in the comments.

To find out our next steps, watch out for my next post.

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